Adjust the setting of the site for easier reading.
Intended for a U.S. audience.
Eye Know – Do You? Podcast
SEASON ONE
Join Danelle Umstead, blind Paralympic alpine skier and host of Eye Know – Do You?, as she shares stories from the inherited retinal disease community on the importance of genetic testing. The stories highlight the courage, hope and ambition of those living with inherited retinal diseases, their families and their health care professionals.
Episode 1: DANELLE UMSTEAD, THE BLIND PARALYMPIAN
Former Dancing with the Stars contestant and blind Paralympic athlete Danelle Umstead shares how genetic testing confirmed her inherited retinal disease diagnosis. Listen in to hear her journey spanning the Paralympic Games, dance floor and genetic testing advocacy.
Episode 2: MEGHAN DEBENEDICTIS, THE ENLIGHTEneD GENETIC COUNSELLOR
As a certified genetic counselor and coordinator at Cleveland Clinic, Meghan DeBenedictis has helped hundreds of people with inherited retinal diseases understand the true meaning of their genetic diagnosis. Here she discusses how genetic testing has changed not only the perspective of her patients, but also evolved her own professional approach.
Episode 3: DR. ELIAS TRABOULSI, THE GENETICS-focused OPHTHALMOLOGIST
Cleveland Clinic’s Dr. Elias Traboulsi dives deep into the evolution of genetic testing technology and what it means for people with inherited vision loss. Dr. Traboulsi is Head of the Department of Pediatric Ophthalmology, Director of the Center for Genetic Eye Diseases at Cleveland Clinic’s Cole Eye Institute.
Episode 4: DR. CHRIS MOEN, THE IMPASSIONED DOCTOR AND ADVOCATE
Advocate and former emergency room physician Dr. Chris Moen started losing his sight at a young age, driving his passion for medicine and helping others with inherited retinal diseases. Originally diagnosed with retinitis pigmentosa at a young age, hear how genetic testing unveiled not only his own true genetic diagnosis, but an accurate diagnosis for 20 other family members.
