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Understanding the genetic cause of disease may open new opportunities for people with inherited retinal diseases (IRDs). Declare “Eye Want 2 Know” and speak to your health care professional today about genetic testing for you or your loved one.
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Christopher Moen, MD and Danelle Umstead, both who are living with an IRD, and Meghan DeBenedictis, a licensed genetic counselor
Cheri Schoonveld, MS, who is a licensed genetic counselor
Danelle Umstead, paralympic alpine skier who is living with an IRD
Mary Lou Johnson Evans and her son Joshua, who is living with an IRD
Isaac Lidsky, who is living with an IRD, and his family
Rebecca Alexander, who is living with an inherited retinal disease associated with hearing loss
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“Genetic testing can help you understand and prepare for your disease.” – Mary Lou Johnson Evans
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Check out the latest issue of @eyecarebusiness magazine to read how #genetictesting helped 3x Paralympic medalist @DanelleUmstead learn the gene mutation causing her inherited retinal disease (IRD) and inspired her to help others in the IRD community. #EyeWant2Know https://bit.ly/35dYpOu
Hear Certified Genetic Counselor Meghan DeBenedictis from the @ClevelandClinic Cole Eye Institute share how #genetictesting helped one boy’s family identify the gene mutation causing his disease. #EyeWant2Know https://bit.ly/2yQBr3S
For 3x Paralympic alpine skier & former #DWTS contestant @DanelleUmstead learning the gene mutation that caused her inherited retinal disease empowered her to raise awareness of #genetictesting w/ #EyeWant2Know. Read her story on Abilities.com : https://bit.ly/2v4tWEF
