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Understanding the genetic cause of disease may open new possibilities for people with inherited retinal diseases (IRDs). Declare “Eye Want 2 Know” and speak to your doctor today about genetic testing for you or your loved one.
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Mary Lou Johnson Evans and her son Joshua, who is living with an IRD
Isaac Lidsky, who is living with an IRD, and his family
Find a provider to help you access genetic testing
Use the locator tool to find a genetic testing specialist or health care professional in your area
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Download information to help guide discussions with your health care professional (HCP), family or insurer
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These organizations can help facilitate with genetic testing or provide additional resources
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“Genetic testing can help you understand and prepare for your disease.” – Mary Lou Johnson Evans
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Understanding the genetic cause of your inherited retinal disease may open new possibilities. Read why community members pursued #genetictesting on the #EyeWant2Know website.
Getting a genetic diagnosis is one of the ways to empower your life while living with an inherited retinal disease (IRD). But we know that the process of genetic testing can seem intimidating. That’s where #EyeWant2Know comes in. This new website offers resources to help you with the process—starting with the “Find a Provider” tool, so you can look up providers in your area to help you access genetic testing.
With the launch of the #EyeWant2Know website, you can download resources to help guide discussions with your HCP, family or insurer #genetictesting
