Community stories

A shared vision

Finding support within the IRD community

Once you have declared #EyeWant2Know and have learned more about your specific inherited retinal disease (IRD) through genetic testing, you can connect with people in the larger IRD community who may be having experiences similar to yours. Look here for support and resources.

Highlights:

  • The power of community—learn about others’ experiences.
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IN THE SPOTLIGHT

For Season 3 of the “Eye Know—Do You?” Podcast, the Two Blind Brothers, aka Bradford and Bryan Manning, explore the topic of genetic testing in a way that’s easy to understand. Funny and engaging, the siblings chat with everyday folks and experts alike, all of them eager to share their experiences with genetic testing and help others along their journey. Lend your ears to the IRD airwaves!

Introducing Two Blind Brothers.

Read their story

Families, specialists, and advocates share stories and advice about living with IRDs and the power of a genetic diagnosis

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Considering genetic testing? Emily Place is an expert with answers to your questions

Your vision-loss journey: a team of specialists may be able to help

Taking the mystery out of genetic testing

Stay in your lane, Pagonis

Love without sight: A Marine with RP has a new best friend

Renowned geneticist, Stephen Daiger, Ph.D., makes the case for genetic testing

Eye Want 2 Know…

How to access new stories as they become available!

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