A shared vision
Finding support within the IRD community
Once you have declared #EyeWant2Know and have learned more about your specific inherited retinal disease (IRD) through genetic testing, you can connect with people in the larger IRD community who may be having experiences similar to yours. Look here for support and resources.
- The power of community—learn about others’ experiences.
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IN THE SPOTLIGHT
For Season 3 of the “Eye Know—Do You?” Podcast, the Two Blind Brothers, aka Bradford and Bryan Manning, explore the topic of genetic testing in a way that’s easy to understand. Funny and engaging, the siblings chat with everyday folks and experts alike, all of them eager to share their experiences with genetic testing and help others along their journey. Lend your ears to the IRD airwaves!
Families, specialists, and advocates share stories and advice about living with IRDs and the power of a genetic diagnosis
Showing 6 of 48 Stories