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MOBILIZING THE RETINAL DISEASE COMMUNITY FOR GENETIC TESTING
A diverse community united
Genetic testing can help people with an inherited retinal disease (IRD) avoid misdiagnosis of their disease variation — something relatively common with such rare diseases.
If you or your family member is diagnosed with an IRD, you should consider genetic testing, as it may help confirm or refine important health information. Genetic testing can also open up opportunities to contribute to research or connect with others in the community – including IRD-specific advocacy organizations – for community, support and resources.
Testing can also provide you and your health care professional (HCP) with important information that can help determine eligibility for clinical trials.
Learn more about the benefits of genetic testing through community perspectives on genetic testing – and declare “Eye Want 2 Know” today.
Want to hear more firsthand perspectives on genetic testing?
Check out our podcast,
“Eye Know – Do You?” for stories of courage, hope and ambition from the IRD community.
Perspectives on genetic testing
Tucker Dupree is a successful marketing professional, public speaker and former Paralympic swimmer. He is a four-time Paralympic medalist and three-time Paralympian. Today, he coaches swimming with the Fitter and Faster Swim Tour across the U.S. and speaks publicly on the topic of his limitless vision and living with a disability. Read the story >